Dear Friends, Family, and respected Colleagues,
It's that time of year again! The time of year that marks another year that we walk for Kai and the thousands of other with this genetic disease. Kai has cystic fibrosis. He is 4 now and is a loving, caring, bundle of joy. He enjoys picking on his big brother Troi (11). He loves imitating and mimicking everything he sees and hears. Kai attends school in the Poway school district special education program working on gross motor skills and his speech.
Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.
CF has mostly impacted Kai's digestive system. Because of this, Kai takes 8-10 pills per day. These pills are filled with the digestive enzymes he needs to digest the foods he eats. They are required with each and every meal or snack. He doesn't object because that's just his "norm". Kai now has The Vest. He calls it "the Jack" which is short for jacket. "The Jack" is one therapy that Kai does twice per day for 20 minutes each time. The vest (Jack) fills with air and then the machine it's connected to vibrates the air providing the percussive pressure neede to loosen up any mucus in Kai's lungs. Kai does his therapies in the morning and evening. His therapies consists of "Jack" and TOBI. TOBI is an inhaled antibiotic to combat a bacteria that keeps lurking in Kai's lungs. This bacteria is Pseudomonas aeruginosa and can really cause serious problems for Kai if it should get out of control. This is the bacteria that destroys the healthy lung tissue resulting in decreased lung function.
So, because of this precious little man, his family and friends walk GREAT STRIDES. They have done this every year since the year he was born. With your help we have received thousands of dollars in donations! We thank you for your continued support. EVERY little bit helps. So, please sponsor our walk again this year if you are in a position to do so. If not, walk with us. If you can't walk, pray for continued health and resources for Kai's care.
GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, I'm walking in the GREAT STRIDES walk at the 2009 Carlsbad - Cannon Park walk on 05/17/2009. Please help me meet my fund-raising goal of $3,000.00 by sponsoring me.
Your generous gift will be used efficiently and effectively, as more than $0.88 out of every dollar you contribute will be used to fund the vital programs of the CF Foundation.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!
Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
Below is a list of donors who have donated to support me. Thanks to everyone for your support!
Be the first one! Click Here to donate.
Team fund-raising goal:
$5,000.00
Money raised to date:
$0.00
Wednesday, March 04, 2009
Subscribe to:
Posts (Atom)
