Prayers for Jude

You know I have never met Jude or his Mommy and Daddy. But I recently read a note on Facebook posted by my sisters fiance David. It touched me so deeply.

Here's the note:

Dear Friends,We are saddened to update you with the news that Jude has been diagnosed with Tuberous Sclerosis (www.tsalliance.org). Over the last two days we have learned that Jude has tubers (benign tumors) on his brain which have been causing his seizures. He also has a couple of tumors on his heart, and we're waiting to hear news on his kidneys as well as other body organs. The prognosis for TS is hard to predict because the outcome varies so greatly from child to child. It will be several years before we will have a better idea of what this means for Jude's cognitive development and overall health.

Jude is still on the steroid ACTH which has allowed him to be seizure free for the past 9 days. We are praising God for this fact! However, he is NOT sleeping and grumpy for at least 20 hours each day...which of course is exhausting and very hard to watch as we feel so helpless. Needless to say, this has been the hardest week of our lives. We are now taking proactive steps to care for little Jude as best we can. Monday we will meet with his new doctors at UCLA which has a fantastic Pediatric Neurology department. With this sudden life change, we have come to the decision that we need to simplify our lives, so that we can best take care of Jude. For this reason we will be selling our condo as well as our car. We just don't need these extra financial burdens right now. Many of you have been incredibly gracious in your offers to help in some tangible way. We are humbled by these offers and we have identified some practical ways you could help if you're so inclined. Truthfully, your prayers mean most and we are grateful for your continued support in this way! Here are some of the needs...The stairwell in our house needs to be painted as well as our master bedroom (and some touch up paint around the house) to help prepare the house to sell as quickly as possible.We need someone to clean the house weekly while we try to sell the house. The multiple Dr. appointments and Jude’s sleep schedule or lack thereof :) make it virtually impossible to stay on top of this. People to help us pack items we wont need while trying to sell the house. (china, books, odds and ends).Any help marketing our house. Here is a link with the info on it.... http://orangecounty.craigslist.org/rfs/439540177.htmlWe continue to be comforted and amazed by your incredible love, support, and prayers during these difficult days. Thank you from the bottom of our hearts.Love, Seth and VanessaLove... “bears all things, believes all things, hopes all things, endures all things.” I Corinthians 13:7

Please extend prayers for this family.