Saturday, August 26, 2006

Clinic Visit 8/24

Well, Kai is 11.33 kilos. He's 33.5 inches tall. His lungs are perfectly clear.

We started TOBI for a + airway culture. Pseudomonas as I mentioned previously is bad for cf-ers. It's bad for anyone with a chronic respiratory condition but especially those with cf. The thick mucus in the lungs hold onto the crap and won't let go...so TOBI will hopefully kick it's butt....

So, Kai is doing great...we are still following his high cal diet so he can get chubby.

It's now:
4 ounces of whole milk + 4 ounces of half and half
Jar baby food with oil (we use Omega oil with all the EFA's he needs for his brain) or we just put the spreadable butter in it (we like the Land O Lakes spreadable butter)

We have been referred to occupational therapy so he can learn to eat. I think we have been so hard on him for putting stuff in his mouth, we missed a learning milestone for him to put food in his mouth....

*sigh*

So, OT it is...we can get him in there and they can teach him how to eat.

TOBI is going rough, we get started ok but half way during the treatment, Kai gets antsy and wants to get down. This is just something he's got to get used to and his behavior is completely normal. He's just being a toddler.

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